freakoutcrazy

Blog des AK Psychiatriekritik der NFJ Berlin

Introducing LERN and the grassroots hearing voices research project

I’ve been horrifyingly busy over the past few weeks–though had a wonderful time co-leading an intensive 3-day hearing voices facilitation training in Michigan a few weeks ago–but wanted to take this opportunity to more widely announce two new initiatives I’m involved in.

First, my multi-gifted friend Laysha Ostrow (PhD candidate in the Department of Mental Health at Johns Hopkins)  and I have recently launched the website for our new nonprofit: the Lived Experience Research Network (LERN).  LERN’s tagline is “bridging advocacy and research by people with lived experience to advance social change” and our organizational goals include (1) promoting and facilitating research capacity building within grassroots advocacy organizations and among non-institutionally affiliated user/survivors; (2) advocating for greater attention to the inclusion of service users and survivors (as well as u/s leadership) in federally funded research and training grants; and (3) directly contributing to the focal growth of of user/survivor researcher discourse, theory and methods in the US.  Here’s a list of our current projects.  We’re also in the process of creating private but shareable Dropbox folders with pay-wall & copyright protected journal articles and measures; community members need only request access using the form provided and we encourage folks to suggest new themes or topics.  In addition we’ve moved our group Users & Survivors in Academia (grad students)–an increasingly vibrant support and activism community– here.

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Enough with the Questions!

A patient needs some extra support over the weekend. I suggest I get the Crisis Resolution Team to visit her every day. ‘What’s the point’, she says. ‘You know, they just ask the same questions again and again. It makes me worse’. I have no answer. I know this is true.

For several decades, since the days when I was a patient, I have seen and heard how an obsession with questions damages psychiatry. Many of us have been asked the same questions day after day, year after year: ‘Do your thoughts seem faster than normal?’, ‘Do you ever have thoughts in your mind which are not your own?’, ‘Do you feel anxious?’, and so on.

What does this feel like? As ever, my patients describe it best. One locates it as “like a machine gun into my brain”, another “an attack, an intrusion, a knife into my body”. A socially anxious man appeals “Did I say what I was supposed too? Did I perform OK?”. A woman with a long history of childhood abuse says the questions felt like “a penis going into my body, again and again”.

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Next Steps: More Lessons Learned From the DSM-5 Boycott

You never know what you’re going to accomplish when you start something. Which is why you start it. Of course, you have to have a plan – always a plan; you have to be associated with other committed individuals; and you have to be fortunate enough to be moving in the same direction as the flow of history. You’ll only know if you’re on the right track when you resolve the classic dilemma of whether to do or not do by doing.

When we initiated the DSM-5 Boycott back in February, we had a plan and a series of objectives:

• Dissuade as many professionals as possible from buying and using the DSM-5; cost the financially stressed American Psychiatric Association income; and undermine the status and prestige of the DSM and the APA;
• Expand the membership of our Coordinating Committee and form working alliances with as many like-minded organizations as possible;
• And, ultimately, disrupt and damage the APA’s relationships with the key players of the public mental health system – Big Pharma, Big Insurance and Big Government.

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DSM-5 Statement by the Critical Psychiatry Network

The following statement was posted on  the Critical Psychiatry Network website in the UK on 23rd May 2013.
 

The Critical Psychiatry Network is concerned with the way the controversy over the publication of DSM-5  is being portrayed in the media and by some academic psychiatrists. The issues raised by the DSM are complex and require careful and studied consideration. There are two aspects in particular that concern us. These relate to the portrayal of the controversy as a guild dispute, and the polarisation of the debate as one of nurture versus nature.

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Hearing Voices Network Launches Debate on DSM-5 and Psychiatric Diagnoses

When I was admitted to a psychiatric hospital, the clear message I received from the mental health system was that I was ill. Everything that I said and did was caused by my illness. The horrendous abuse which I had disclosed “never happened” – even thinking it did was part of my illness. If the abuse did happen (one psychiatrist did believe me) then, in his words, “Pandora’s box should never have been opened”.

Because I was ill, “I needed to take medication.” The fact that I didn’t want to take medication was “because I was ill.” If I wanted to get better, I “must accept my diagnosis and take medication” and then they would give me welfare benefits and a free bus pass. I wouldn’t ever recover. I would always have this illness. I wouldn’t be able to work. I didn’t know what was best for me. I lacked insight. As mental health professionals, they all knew what was best for me, because they were the experts.

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